My Cancer Treatment - Julie's story
Publish Date: 19/11/2013
Cancer affects many lesbian, gay, bisexual and trans people every year. This could be a personal experience of a cancer diagnosis, or through a family member, friend or partner. The Lesbian and Gay Foundation, on behalf of the National LGB&T Partnership, is working with Macmillan to facilitate a national LGB task force on Cancer and identify patient experience (we are hoping to explore issues that affect trans* patients in parallel).
Although there is currently no way to identify how specific services deal with their LGB&T patients, there are ways in which you as a patient, carer or loved one can find out more about the services available to you. Stefenie Milosz, from My Cancer Treatment, tells us more.
My Cancer Treatment supports the NHS patient agenda ‘No decision about me, without me’ by empowering patients with transparent information, detailing the quality of NHS cancer services provided at hospitals and community services in England.
Using the ‘Find Your Treatment’ tool on My Cancer Treatment, patients can find and compare the quality of cancer services.
This tool covers all of the common tumour types and some of the rarer cancers. In three steps, search by location, cancer type and hospital, to access detailed reports which include:
How well the service compares to other teams in England, treating the same cancer type
If a serious concern or immediate risk to patient care or safety was identified
If the medical team has all relevant members
The percentage of patients seen within the waiting times standards, set by the Department of Health
Patient’s experience of care in the hospital
Julie Oldroyd, 58, survivor of advanced Breast cancer and Parotid cancer, a rare head & neck cancer talks about My Cancer Treatment.
"A question that we patients and our carers often ask when faced with a cancer diagnosis is ‘where can I get the best treatment?’
"This is particularly important for those with rarer cancers whose local hospitals don’t provide the specialist services needed. For the first time we can find information that has been quality assured, in an easily accessible way, compare services and make informed choices about our cancer care.
"My Cancer Treatment has been developed with full involvement from a group of cancer patients, to ensure that the tool is easy to use and helpful. However it is understood that when deciding where to go for treatment, what may be important to one patient could be completely different to another.
"Therefore My Cancer Treatment provides an overall summary of the service, providing transparent information that supports patients when deciding where to go for treatment or when seeking a second opinion."
My Cancer Treatment is brought to you by the National Peer Review Programme, an NHS programme that has assessed cancer services nationally since 2001. The National Peer Review Programme is now working with Macmillan Cancer Support, to ensure My Cancer Treatment is accessible, easy to use and helpful for people affected by cancer. See the presentation below or visit www.mycancertreatment.nhs.uk to find out more.
If you have any questions or suggestions, please contact the My Cancer Treatment team firstname.lastname@example.org.